Genetic studies look for associations between DNA and confirmed diagnoses. Other studies look for correlations between clinical records (symptoms before death) and pathological details (confirmed disease).
Neurological diseases are often diagnosed incorrectly. In fact, up to 50% of atypical parkinsonian disorders are incorrectly diagnosed, even by neurologists. Only brain autopsies can deliver a diagnosis that is certain to be correct.
Only brain autopsies can deliver a certain diagnosis. Because symptoms of many neurological diseases overlap, clinical assessment is often incorrect, even when the diagnosis is delivered by an experienced neurologist.
Sign up for tailored emails. Focus on specific neurological disorders or choose among other subjects relevant to caregivers. BSN reviews the medical journals and popular press saving you time. Our web site's blog entries capture historical emails ...
Advance planning for brain donation greatly improves the chances of success. Since the tissue must be procured within 24 hours of a loved one's passing, it's best if the arrangements are figured out before grief and stress over take the family.
The Brain Support Network team regularly reviews resources made available by research organizations and disease interest groups. Most of these resources are available on the Web. See our lists of top resources for each disorder.
Caregiving, especially for loved ones with neurological disorders, is never easy. Join us every six weeks in San Mateo for our caregiver-only support group meetings. The meetings are suitable for caregivers dealing with one of the four atypical parkinsonism disorders.
Caregiver Support Group Meetings Continue, Despite COVID-19
Since March 2020, Brain Support Network has transitioned our caregiver-only support group meetings to a virtual format. Most participate via video but some join by phone only. We meet nine times a year, on a Sunday, from 5-7pm. If you live in Northern California and are coping with Lewy body dementia, multiple system atrophy, progressive supranuclear palsy, or corticobasal degeneration, Dried Bamboo Shoot - 14oz Three separate meetings are held (PSP/CBD are in one group) with at least one experienced caregiver to facilitate each meeting. The facilitators’ family members with these disorders have died and the diagnoses confirmed through brain donation.
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